Monday, September 27, 2010

surgery

here she is, waiting for the surgery.

the day after surgery. the hospital had a scrapbooking activity.


gwyneth had all sorts of good ways to cheer liesel up. sisters are way better than moms when it comes to that sort of thing.


physical therapy.

and here it is.
be glad i didn't show you a close up of this hole 3 1/2 weeks ago. this is looking good.
more p.t.
the package loot.
home spa treatments
notice the plate of goodies.
another view.
the wheelchair.
first time going upstairs.
first time dressed and sitting at the table.
future fashion disigners.


i guess it's about time i stop procrastinating and just get this post over with. every time i sit down to do it, i give up because there's really too much to say, and no way to say it. does that make sense?
liesel had her big leg surgery almost 4 weeks ago. she has an external fixator on her leg now, and we're in the process of stretching/growing her leg to be about 5 centimeters longer so her legs will be more even in length. basically, during the surgery the dr. cut the femur bone so it could be separated apart and then attached 7 metal pins to various parts of the separated bones. the pins are attached to the fixator, which has these little rods on it that we turn 3 times a day to stretch the bones apart. so far she has "grown" almost 2 centimeters in the last 4 weeks. if all goes well, we'll have a couple more months of "growing" and then a few months of letting the bones grow back together again and get strong. the earliest the fixator will come of is march, but it could be as late as june or july. liesel does therapy at home 3 times a day and then we go to 2-3 dr's appointments/therapy sessions a week to make sure we're on track.
see, this is the problem with doing this post. that's all the technical stuff explained, but there's so much more going on..........i don't think there's any way to prepare for the kind of emotional roller coaster ride a surgery like this puts you on, and there's certainly no good way to explain it on paper.
i thought i was pretty good at seeing liesel come out of surgeries, but when i saw her lying there before she woke up and the reality of the fixator hit me, i burst in to tears and couldn't stop crying. and i don't ever cry in front of people. especially doctors. before i left the hospital to go home to the other kids (loren was staying with liesel--we took turns) i had to stay in the bathroom for 10 minutes before i looked presentable enough to walk through the halls. the first time liesel did therapy at the hospital it was absolutely awful-- she was dry heaving from pain, gwyneth was standing behind her rubbing her shoulders with tears just streaming down her face, i was crying (again.......in front of people). since we've come home from the hospital we've had lots of ups and downs. the main problem right now is that liesel's muscles/tendons/etc. can not keep up with how fast her leg is being stretched so they are really, really, really tight and sore. so therapy is hard. HARD! and it's just getting really old to be in pain all the time and to be in a wheelchair and to know it's going to be this way for a long time. i was not prepared for how hard it was going to be on me to watch liesel go through this. yesterday in church i totally lost it and cried and cried and couldn't stop, even when i was playing the organ on the closing song. then, i'd finally gotten ahold of myself and was heading to primary to do the singing time and somebody stopped me and asked how things were going. i literally burst in to tears (big sobbing ones) and couldn't talk for like 5 minutes. and then i was just like "i'm fine. just tired. everything's okay." because really, we are okay, it's just hard.
and, see, that's the problem with trying to write it down all down. because we really are fine. but it is also really too hard to do. it's both at the same time. all the time. see, now i'm crying again, but i'm also about to write a list of all the ways liesel's doing so well. and she IS doing so well. but it's still too hard.
SO, here are some of the thank-goodness-for things:
1. having twins. i have never, ever, ever, never in my whole life seen such a bond between two people as i've seen between liesel and gwyneth during this time. gwyneth is amazing. liesel is amazing. it's awe-inspiring.
2. children who read. we've gone through maybe a thousand books. that's probably an underestimate.
3. fashion-designing. hours and hours and hours spent designing fashions.
4. home spas. lots of painting fingernails, toenails.......face masks.........homemade lip gloss......
5. moms and sisters who will spend lots of time talking to liesel on the phone while she does therapy.
6. moms and sisters who will spend lots of time talking to me on the phone about liesel's therapy.
7. loren. best husband and dad ever. he is also turning in to an amazing cook. i'm trying to convince him it should be a permanent thing.
8. fathers-in-law who come to help out and sweep floors and load dishwashers and spend hours with pace in the pool.
9. grandparents, aunts, uncles, cousins who send packages with all sorts of pain-distracting goodies/crafts/books/etc. we couldn't have survived without them!
so basically, we ARE doing really well, liesel's exceeding her dr's expectations, we are seeing the lord's tender mercies all around us, we have lots of good times every day............and it's still hard.

19 comments:

R said...

I love you and those girls! Don't forget you are prego too, that can't help the emotional stability. But I don't blame you at all for having a few tear fests. My sister loves the quote, "The cure for anything is saltwater... sweat, tears, or the sea."

Tine said...

wow. i don't even know what to say. i'm surprised you're crying as little as you are. i myself have cried about the whole thing several times and i'm not even involved! we love and pray for you guys all the time!

Diane said...

My goodness. My heart goes out to all of you. Just think how strong you will all be when it's over! (Keep telling yourself that). And keep documenting it.

Wow. Know that we love you all.

Marian said...

too hard for an 11 year old. too hard for her mom. thanks for writing about it, and posting pictures (i could hardly look at the close up ones, i can't imagine how it looked right after surgery). sure love you guys!!

Orva said...

Super Mom and Super Girl (Girls)! I am so glad to finally see the "bear trap" so that when I see it in person I don't faint or cry or something. (I might anyway.)

Penny said...

Laura - I'm sorry that this is your family's lot. I know that this isn't an easy thing. I didn't realize this was coming so soon. Call my friend Andrea 801-731-8694. Tell her I told you to call her. She has walked in these shoes and knows how your heart and Liesel's heart is feeling. I've told her about you. She would be happy to chat. Love you guys and thinking of you. I'm so glad she has you.

Emily said...

Laura, you're amazing. Super amazing. I cried just looking at these pictures and thinking about sweet Liesel. How great for the girls to have that bond and each other and YOU for a mom!

Eliza said...

Love you Liesel! Hang in there girlie! It will be worth it in the end. The pictures made me cry and cry too. We're praying for you!

Little Red said...

Your so right- I can't imagine hard it would be to gather thoughts together and to write them down! But thank you for giving an update! I also cried while reading through it. You and Loren are such amazing parents, and the kids strength is a such a testament of your family. I love you guys. Wish I could be there to help sweep floor, swim, fashion design....cook. What ever. Wish we were closer!

Joanne said...

I'm so glad you posted about it. I couldn't even read through the first few sentences without crying, though, so I don't know how you're doing it. I loved seeing the pictures of your sweet girls (but the fixator is even worse than I was imagining - yikes!). Liesel and you and your whole family are amazing.

I liked the quote that one commenter said about saltwater being the cure for anything - sweat, tears, or the sea. I guess I'm praying that your new baby will also find a way to be a cure for anything. Love you.

Ellie said...

Wow! We can add this to the long list of things only the Allens are strong enough to do! I can't believe it's already grown 2 cm! Even when we have talked about it I haven't really thought about how fast it would have to grow to get 5 cm in just a couple months. I'm glad you have a list of things that are making it a tiny bit easier. Call me if you need a fresh shoulder to cry on. You guys are in our prayers.

Poppy said...

Oh, Laura, I am so sorry! I know how much you don't like to cry, so I can imagine how hard this is. Wish I were closer to lend a hand. Yikes, that thing looks like something out of a scifi movie. You guys are awesome. You are in my prayers. Love you!

Rochelle said...

Laura, I've always thought those twins were unbelievable. (and you too of course) I agree watching family members in pain or suffering is THE WORST. It makes me wonder how hard it is for our Father in Heaven as he watches his children suffer here on earth. It makes me think motherhood is the closest you can get to Christlike love. LOVE you guys. Hang in there.

Megan said...

We love you guys, and I'm so glad to get a post from you so we know how you're doing. I so wish I could be there to help -- we all do -- and we love you, our far away friend! Your family is in my prayers and, as always, you are my hero. Someday I will be more like you.

Annette said...

Wow. I will now stop complaining about things in my own life. I hate to cry too, but I did reading this You have some pretty amazing kids. I'm sure they take after their parents.

Kari said...

Oh Laura--does it help you at all to know I cried too just reading about this?! We love you and your family so much and are constantly in awe of you. It breaks my heart to think of your girls (and you) in so much pain. But it sounds like they and your family are growing even stronger in so many ways. I wish so badly we could do more, but know that you are in our prayers and we love you! Stay strong, breathe and try to enjoy that sweet baby!

Mindy said...

I love that Liesel is smiling in all the pictures. What a brave girl she is. I can't imagine how hard it is, but try to keep smiling.

Betsy said...

Wow, Laura, I had no idea you all were going through this! You all are so strong (ANYONE would cry dealing with this, don't feel bad!). I am so late reading this, I hope thing are going well and you are buoyed by all the prayers from family and friends. I will start praying for you guys too!

SAME (SOCIEDADE ANÔNIMA DE MENTES EM EVOLUÇÃO) said...

Paz Amor E Alegria